GoutPal Interactive

As a quick update….

As I struggle to find a Doctor who will see me sooner and get my on Allo – the super dose of Steroids has basically “fixed” me temporarily.  I am scared crapless that next week (when I take my last dose) that it will come back.  Basically most of the pain is gone, I still can't run, skip, etc..but I can function.

In the meantime…my neighbor heard of my issues…she is a “raw” nutrionalist and SWEARS it has cured Gout before.  I won't go into all the details, but has anybody “confirmed” a RAW diet can indeed be a non-medical cure?

Thanks!

Hehe…that is prety funny.

Yeah, I guess my question should have been a tad different.

Like can a RAW diet “control it” to the point of not needing meds, but I think the answer is NO !  I guess I am still in denial that I need to be on meds the rest of my life. 

Trev,

Mmmm…what if I had 20 attacks, covering my knees, feet(all joints) elbow (just 2 small ones) and my UA is above 8 (during an attack).

As a side note, I am hoping that AlloP will help lower my BP, as it is around 134-140 / 78-82 untreated…with great low BP diet, etc.

Anyways, I know the answer…now all I gotta do is find a dang Doctor that will help!

zip2play said:

Post edited 11:57 am – July 30, 2010 by zip2play

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Then let me retranslate, goutful.

I gave you the CORRECT way to deal with gout. THere are many INcorrect methods confront. So since I do not think you have any particular reason to believe me over the opinions of others, I subtly suggested that YOU must become your own expert.

In becoming your own expert, learning about gout from RESPECTED and THOROUGH sources is preferable to internet information geared towards buying herbal cures, “special” secret ingredients,  cures that the “medical establishment won't tell you” just send $39.95, etc.

To repeat MY answer to your questions:

I'll field those 3 questions: The answers are: allopurinol, allopurinol, and allopurinol… for life to lower your serum UA below to 6.0. It's been the same answer for 50 years. If it doesn't work  one can try allopurinol + probenecid…then febuxostat if one is rich. See, not so complicated at all. You do not have to qworry about weekend light beer, water consumptions, cherries, black beans, chinese herbals, etc.

So basically your choices are:

1. believe ME,

2. believe someone ELSE,

3. become and expert and believe YOURSELF,

4. Flip a coin!

The same kind of thing can bve said of many things:

Is man's activity seriously warmning the planet?

Does tax cutting inevitably raise public debt?

Is chemotherapy efffective in stopping cancer.

Does God exist?

There are conflicting opinions on EVERYTHING and the more you learn about a subject the more likely YOU are to make the correct choice. Without thorough knowledge you either trust someone or make a guess.

You DO realize you are saking a pretty existential question…”How do we know truth from falsity?” I  think a good answer is to become as knowledgeable as possible or find someone who is.

Zip -   I never asked you “How do we know truth from falsity?”    Please don't make up things that I didn't say and then pretending that I said them.    If you are uncomfortable with a discussion regarding some of the confusion regarding the efficacy of various treatments that doesn't mean you have to start making up smartass responses to questions nobody is asking.   I never mentioned to you anything about secret cures or remedies or internet hoaxes and I never asked you any “existential questions”

I get that you think the answer to everything is allopurinol.   Unfortunately for you that is not always the case for some patients.  Perhaps instead of misstating my comments and telling people to believe everything you say or go read a medical textbook, you could actually try to understand where other people are coming from and what our experiences have been before deciding that the answer to everything is allopurinol.   Because that is not the answer for everybody.

That's not good Toof!

Two words for alkaline:  Fruit and Veg!

You are out of luck on the pain though- only BBB seeems to work in any way with me, esp. if caught early on.

Try to get Soya version of BB, they are stronger, apparently.

With my BP I can't do- but the other 'two words' are Soda Bicarb !  it seems to work for some, makes sense- but again the pain issue will need pain meds, as well. 

Good luck- you certainly need better attention than currently!

It really sucks that you have to put up with the kind of pain we go thu till next month. I'd be on the phone trying to get in to any doctor that I could. And get on as many cancelation lists as I could. I think I sent you a pm. about baking soda and how it helped me. Anyway I know you have to be careful because of you BP but if I were you I'd try 1/8 to 1/4 teaspoon in 8 oz. of water a couple of times a day. I was taking 1/2 teaspoon 3 and 4 times a day. Whatever you decide good luck and keep us posted. LIMPY                  P.S. IF  DOCTORS GOT A TASTE OF GOUT THEMSELFS I BELIEVE THEY WOULD BE A WHOLE LOT MORE HELPFUL. AND WE WOULD PROBABLY HAVE A CURE BY NOW.

Post edited 12:31 pm – August 5, 2010 by zip2play

Goutful,

It is clear that you have read very litttle of what is in Gout-pal. Given your complaint of how hard it is to glean knowledge about gout and then bristling about being told the best way is to read a medical book, it's pretty clear that you would rather entertain doubts than find the best way to solve your gout problem.

That is all well and good, but PLEASE refrain from telling me what to say or how to say it. Post whatever you want, ask whatever questions you want, read my posts or don't read them. Read something outside the internet or don't.

But DO NOT tell me what I should or should no say about gout…I do not need a censor. Basically, if you do not like my answers to your questions, then LUMP it. I have learned by your arrogant rudeness that I will not respond to any of your question so you will not have to read any more of them. Perhaps after you have spent 15 years pain free while eating and drinking whatever you wish, as I have, then you can contribute something usefull that you have gained from your long experience.

toofast said:

I can not FIND a doctor that will see me for yet another month, so for a MONTH I have to suffer I guess.  I am doing all the cherry juice, BBB, etc and nothing is working.

It's too bad you're having trouble finding a doc to write a prescription.  The doctor situation, fortunately, is better here in the Baltimore/Washington metro area.

I hadn't seen a doctor in ten years.  I went to an immediate care place without an appointment and saw a doctor in 20 minutes.  I said I was having a bad gout attack and needed prescriptions for prednisone, colchicine and indomethacin.  I got the first two scripts, but the doc said to take 800mg of ibuprophen 3x a day  instead of indomethicin as it was easier on the stomach.  Fine by me.  Indomethacin didn't work too well anyway.  Since I was self pay they only charged $68.

A week later when the prednisone wore off the gout came back pretty bad and I called another place at 9am, made an appointment for 10:30 and saw a doc who took blood for a UA test and wrote a script for a bigger dose of prednisone and allopurinol.  That cost $150, but it was worth it.  They told me to come back after being on allopurinol for a month for another blood test so the dosage could be adjusted.

There are online pharmacies where you can get colchicine and allopurinol w/o a prescription, but they are overseas and it takes a couple of weeks for the stuff to arrive.  That's not much help when you're suffering.  I got a good supply of colchicine from one, though, and it works just fine.

When I had my two week attack from hell, I found ibuprofen helped a little, also soaking in very hot water.  But it took prednisone to knock the snot out of the attack, and now colchicine is working wonderfully to kill gouty twinges before they get out of hand.  I still take cherry juice (which tastes great) and BBB (which tastes not so great), but I'm not sure they do any good.

Good luck.

Meta, I think your very lucky that BBB works for you and that you can get by without any meds. But in my case and many others I'm sure. The natural cures just don't work and the every day pain will win in the end. I myself use to box and got in more than my share of street fights. So I always thought I was a fairly tough guy. But after going more than a few rounds with Gout over the last year or so. I feel like a sissy when it comes to the pain this curse brings. So “enslaved” or not I'm just glad there is a medication that will help me even if I have to take it for the rest of my life. Like I said before if you can get by without it your very lucky. LIMPY

Meta -

I agree 100% with you, at times I feel I know more that most Doctors.  I have high BP and Strokes in my family.  I eat almost a perfect diet, am almost the perfect weight.  I don't drink a ton.

When I was 25, my BP was 160/90  – doctor said only choice was bp pills.  I listened…they worked.  HOWEVER, I hated that I had to take pills and I hated that it was making me feel sick everywhere else.

So, I decided to REMOVE 100% my salt/sodium intake…watch my diet and weight even closer and excercise more.

Guess what, no more high BP.

HOWEVER, NOW I have gout…so I can't exercise as much, guess what my BP is doing ?

Bottom line is I have tried all natural cures that I know…and nothing is working (at least fast enough).  Hopefully I can start taking Allo and then once the pain is gone, try to figure out how to wean my self off it, or NOT ?

Anyways…last night was the most painful night I had in weeks again…loaded up with sleeping pills and still woke up 4-5 times cause of pain.  I now have a doctors appt 2 weeks out  -

Quick question though…it seems that my pain seems much more extrememe during the night?  is that possible or am I crazy ?