Has anyone tried to collect disabilities for gout

Gout Support Home Page Forums Please Help My Gout! Has anyone tried to collect disabilities for gout

This topic contains 11 replies, has 4 voices, and was last updated by Profile photo of JohnnyBrew JohnnyBrew 4 years, 11 months ago.

Viewing 12 posts - 1 through 12 (of 12 total)
  • Author
    Posts
  • #3119 Reply
    Profile photo of JohnnyBrew
    JohnnyBrew
    Participant

    Reading the forum it seems that a lot of you are out of work. Are there ways to take temporary disability to help pay the bills while your laid up with gout? Or maybe get a handicap sticker to hang from the mirror while parking at the grocery store.

    #6957 Reply
    Profile photo of zip2play
    zip2play
    Participant

    I see no reason why gout should not be viewed like any other disabling condition.

    For a handicapped sticker, all that's needed is a note from your doctor.

    Some people with advanced chronic gouty arthritis can be as crippled as someone with rheumatoid arthritis. Thank god for allopurinol that prevents this from being an inevitable outcome with gout.

    #6970 Reply
    Profile photo of JohnnyBrew
    JohnnyBrew
    Participant

    zip2play said:

    I see no reason why gout should not be viewed like any other disabling condition.

    For a handicapped sticker, all that's needed is a note from your doctor.

    Some people with advanced chronic gouty arthritis can be as crippled as someone with rheumatoid arthritis. Thank god for allopurinol that prevents this from being an inevitable outcome with gout.


     I have been in bad shape since 11/12 of this yr and think that if this lasts any longer and I lose my job what can I do but to file for temporary disability

    #6973 Reply

    There should be no reason with current medication for anyone to be disabled by gout.

    Allopurinol or similar uric acid lowering treatment to get rid of crippling crystals, with short term pain relief as required.

    It is one of the most easily treated of the rheumatic diseases, though it does require a competent medic and a co-operative patient. The common causes of treatment failure are inadequate medication either due to under-dosing by the doctor or failure of the patient to take the medicine as prescribed.

    Undiagnosed Tophaceous Gout

    Of course, the doctor needs to recognize gout in the first place. Unbelievably, in 2006, the poor soul pictured here was reported in Mandell's Clinical Manifestations Of Hyperuricemia And Gout. He had been referred by his doctor with unrecognized gout!

    #6976 Reply
    Profile photo of JohnnyBrew
    JohnnyBrew
    Participant

    GoutPal said:

    Post edited 1:20 am – December 24, 2009 by GoutPal


    There should be no reason with current medication for anyone to be disabled by gout.

    Allopurinol or similar uric acid lowering treatment to get rid of crippling crystals, with short term pain relief as required.

    It is one of the most easily treated of the rheumatic diseases, though it does require a competent medic and a co-operative patient. The common causes of treatment failure are inadequate medication either due to under-dosing by the doctor or failure of the patient to take the medicine as prescribed.

    Undiagnosed Tophaceous Gout

    Of course, the doctor needs to recognize gout in the first place. Unbelievably, in 2006, the poor soul pictured here was reported in Mandell's Clinical Manifestations Of Hyperuricemia And Gout. He had been referred by his doctor with unrecognized gout!


    That is a tough picture to look at. You are right in all that you said and yes I'm on allipurinol 300mgs since Oct and everything that I read say that when there is an adjustment to the mgs you can expect a flare. When I went from 100 to 200 mg I was laid up for a month and now the flare up from the 300mg adjustment has caused the worst flare up ever. I had mentioned before I'd been laid up since 11/12 of this yr. Playing hookie at my job can last only so long before I'm fired and that is why I asked if there was temporary disability because I know it won't last forever. I hope that all the adjustments and pain that I'm going through doesn't last much longer and that with the hopes of what I'm going through now will benefit me greatly by having a normal and gout free lifestyle in the future.

    #6979 Reply

    with short term pain relief as required.”

    But what about colchicine or similar during the time allopurinol is getting rid of the old crystals?

    #6983 Reply
    Profile photo of zip2play
    zip2play
    Participant

    Johnny,

    Do the BIG colchicine treatment:

    2 pills to start, then one an hour until you reach 16, get remission of the joint pain, or start  a furious diahrrhea. The treatment can work wonders in a single day.

    Go into your workplace and show your boss and maybe HIS boss what your joints look like, what drug you are taking, and explain that the disability is likely to be temporary. With a good deal of LUCK the colchicine treatment will be the end of it.

    A parking sticker is childsplay but being declared disabled is another. Most states have temporary disability where you basically get the Unemployment Compensation rate but it's called Disability payments for 26 weeks and it is for almost any sickness. But trying for federal Social Security disability with gout will likely run into a brick wall. There is no such thing as temporary Social security disablement…it must be permanent or expected to end in a quick death.

    #6988 Reply
    Profile photo of JohnnyBrew
    JohnnyBrew
    Participant

    Zip thanks for the info.

    The colchicine regiment is very tough for me due to the fact that I have diarrhea very easy already and for me to go through a flare were I'm bedridden and run to the bathroom that frequently is almost not worth it. I have done the colchicine regiment on three different occasions now since I was diagnosed with gout. I use crutches and my bathroom is not set up for handicap access. To even sit on the toilet is the biggest challenge without plopping down and breaking it. Then to sit there with my foot on fire while going is complete torture.

    The reason I speak of Disability is because even after a flare I never seem to heal 100% and end up limping around till I have another flare and this is going on now for almost a year. I know that I'm lowering my uric acid and losing weight and going through all this in hopes to never go through all this later in life, but its the not knowing how much longer I need to go through these flares that make me worried about my job and paying the bills if I get fired. If these flares don't stop for say a couple of months I'm going to no doubt lose my job and will need some sort of income to supplement till they stop completely. 

    #7008 Reply
    Profile photo of NateA
    NateA
    Participant

    JohnnyBrew – I'm in a very similar situation as you.  I have been off work for the past three weeks taking leave-without-pay with the paperwork for temp disability going through review.  My doctor wanted to put me on temp disability a lot earlier, but I refused until my condition became so bad that I could barely drive. 

    I've been on allopurinol for over 4 months now and have been taking 600mg/day recently.  Two months ago I cut meat, except for the occassional fish, from my diet and haven't had an alcoholic drink during this span either.  Yet, here I sit, completely miserable and disabled, not even able to make it up the stairs in my house.  I have to bee back to work on the 4th of January, but I don't even now if I'll be able to put a shoe on by then.  My manager and her manager are totally supportive of me taking the time that I need.  It's my company that I work for that is putting up the roadblock.  I don't even know if my disability will be approved, but I'll let you know when I find out. 

    Oh, and the colchicine has never worked for me and has only caused horrible bouts of diarrhea and gastrointestinal discomfort.  I tried it again a month ago at the bequest of my doctor and it did nothing to alleviate the attack in my knee.  Getting cortisone injections seems to work better but still doesn't do much.

    Best of luck to you.

    Nate 

    #7009 Reply
    Profile photo of JohnnyBrew
    JohnnyBrew
    Participant

    Thanks Nate and good luck to you as well. Today is my best day yet since Nov 12th so I am hopeful and staying positive.

    #7021 Reply
    Profile photo of zip2play
    zip2play
    Participant

    Take heart guys,

    Three or Four hundred mg./day of allopurinol will soon put your gout into remission. Make sure that you NEVER forget the old axiom: test uric acid frequently and keep it under, 6.0 mg/dL.

    Johnny,

    My big attack involved the inability to touch my toe with a FEATHER. In spite of this, I did the BIG colchicine treatment (22 pills) and when the runs hit, I had to get from bedroom to bathroom on my hands and knees with my sore foot held high behind me careful not to even touch the doorway with it. Believe me, it was all worth it when the pain went away over a 5 minute period…almost unbelievable. As the diahrrhea continued on a 5 minute basis I gave up trying to manage it and just kept jumping into the shower and hosing down for the next two hours….foot never hurt again. (Began allopurinol the next week…almost 20 years ago.)

    #7078 Reply
    Profile photo of JohnnyBrew
    JohnnyBrew
    Participant

    WOW Zip that is a crazy story and I do have come colchricine but hope that my flare ups will be a thing of the past. I'm hoping to get my results today to find out my uric acid level. Wish me luck the last time it was 7.4 hoping 6 or below this time.

Viewing 12 posts - 1 through 12 (of 12 total)
Reply To: Has anyone tried to collect disabilities for gout
Your information:





<a href="" title="" rel="" target=""> <blockquote cite=""> <code> <pre> <em> <strong> <del datetime=""> <ul> <ol start=""> <li> <img src="" border="" alt="" height="" width="">