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What to do next ?

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6:29 am
October 19, 2009


nokka

Toe Torture (status changes after 50 posts)

posts 41

Yippee, its worked. Please feel free to delete the posts above as I'm going to repeat myself.


It's now over 8 weeks since my initial attack. The slight tenderness in the toe remains, but I now also have tingling in both knees. I wouldn't say that things are particularly painful, but they are a constant reminder and worry. I phoned my Doctor to ask him about the knees and he felt that it may be just that my gait has changed slightly which may have caused this. I confess I'm pretty doubtful about that.


I see the Doc again in a couple of days time to get the results of my 2nd blood test, so we'll see what that says. However, I am concerned that the lingering effects from the initial attack is taking so long to clear. Are new crystals being formed hence the lingering ? Or is it just taking its time to recover, which it will do slowly but surely.


My trip to SE Asia is coming up fast, only just over 5 weeks to go. I'll be out of the country for 4 months.  If a decision is made for me to start on allipurinol, will that give enough time for things to stabilise and be monitored properly ?

7:04 am
October 19, 2009


trev

Tophi Terror

England

posts 749

I would wait and see the results. Things seem relatively stable right now.

Your Dr. doesn't seem keen to start you on AP and with a trip coming up  you will ,anyway ,be in strange territory to be trying new meds that could possibly set you back, initially at least.

5:01 am
October 20, 2009


zip2play

Member

posts 1213

Wow,

I don't get to say this often but I am in your doctor's camp. Trying to avoid putting pressure on a part of the foot, even if slight, can put a stress on a different set of knee ligaments then ususal soon they start to complain in the only way they can…pain. Often replacing a pair of sneakers can do the trick.


It is quite possible that knees problems can be gouty but it's better than 50-50 that they are not. I for one have frequent knee problems, back problems, and rotator cuff problems…and it's often tempting for me to think gout but I think ABUSE is more likely.


If you are going to start allopurinol, please do so TODAY if you want to be sure of some stability on that trip. But then who knows, doctors in Asia might be far better than ours in dealing with so old a disease that probably gets pooh-poohed at Harvard Med and Johns Hopkins. Remember, if you have an attack on that trip, one word: colchicine.

3:43 am
October 22, 2009


nokka

Toe Torture (status changes after 50 posts)

posts 41

Went for my 2nd set of blood test results yesterday. My figures came in at 338 umol/l, which translates as 5.68 mg/dl. This is a quite dramatic decrease from the 467 umol/l (7.85mg/dl) when I was tested a few weeks ago. Needless to say I am really pleased with that figure. Laugh


I thought I may get a slight drop; I've have slowly cut out various things from diet these past few weeks. The last 3 weeks I have been almost totally vegetarian and have also reduced the wine intake somewhat. But, I confess, I didn't expect the fall to be quite so big. I even questioned the Doc that perhaps he'd got the results mixed up with someone elses. (He assured me he hadn't Wink)


I purposely went for the test on the same day of the week at the same time of day to try to give a good comparison.


Anyway, for now I've decided not to take allipurinol and see how it goes. The Doc felt that from a pyschological viewpoint it may be an idea to have allipurinol with me, so gave me a prescription – just in case I feel the need to start when away. I do feel that, at some point, meds may well be the way to go. You guys on this forum have helped me realise that allipurinol is usually extremely safe and well tolerated – the Doc confirmed this. As he said, he wouldn't normally prescribe a new drug to someone when they are travelling overseas, but with allipurinol being so well tolerated and as I'm well informed about the drug, its side effects etc (thanks again, guys) he felt it would be OK.


So, that's that. He doesn't want to see me till I get back. My task now is to keep those levels low. I have a pretty good idea of what may have caused the last attack – and am hopeful I can avoid making the same 'mistake' again.

7:10 am
October 29, 2009


nokka

Toe Torture (status changes after 50 posts)

posts 41

Hi, all. I'm curious about what you thought of my second set of results.


I rather thought I may get replies questioning the stats, that it isn't possible to reduce uric acid levels that much that quickly.


Also, what would you do in my position ? Obviously I would prefer to keep a my levels below 6mg/dl (as they are now) without taking allipurinol. But, in reality, do you think that can be done ? Inevitably, the longer gout is held at bay, the more I will get back to eating those high purine foods – prawns sound good to me. Plus a cold Singha beer, of course. Cool


I'm pretty sure that if I have another attack in the shortish term, then its allipurinol for me. Its just this stage of waiting and seeing that bothers me a little – kind of russian roulette with a prawn as the gun.


By the way, I continue to improve. I went to my podiatrist this week. I wear orthotics in my shoes due to an episode of plantar fasciitis a few years ago. I went partially to have the orthotics checked out (I needed new ones, the old ones were cracked). He knew quite a bit about gout; he checked out my toe which still had a little lingering pain. He felt this was no longer due to any gout in it, just taking its time to get better. At one point he grabbed hold of the toe and pulled it quite hard outwards and then upwards. It was something I never would have done myself, but he gave me this as an exercise, plus some knee excercises. I have definitely found further improvement since doing this. (all to do with improving mobility apparently. Knee exercises to strengthen muscles around the knee).


7:32 am
October 29, 2009


GoutPal

Admin

Baildon, Yorkshire

posts 1171

Doctors results are likely more reliable than home testing, but not foolproof. As well as your own natural uric acid level fluctuations, variations can be introduced by poor sample handling or “operator error” – even in the best regulated environments.

My golden rule on uric acid tests is to look at trends, and ignore results outside the trend. Not very helpful here, as by definition you cannot ignore the latest result!

But the real issue here remains your uncertainty over taking allopurinol close to, or during, your overseas trip.

The big question – are you one of the rare group with allopurinol sensitivity, or even rarer hyper-sensitivty. Foreign trips are not the place to find out.

If you can continue to maintain uric acid below 6 with acceptabl lifestyle changes, then allopurinol should not be necessary, but you probably need another test or two to see if this is the case.

Whether you go on allopurinol or not, you can never be sure a gout attack will not happen, so be prepared with pain relief.

Unless replying to specific points in this topic, please start a new topic. See new topic link above, or gout forum guidelines.
Current gout status in my profile.

8:34 am
October 29, 2009


trev

Tophi Terror

England

posts 749

@ Nokka – “Hopeful I can avoid making the same 'mistake' again”

Don't be 'hopeful'-  with your progress,  'be CERTAIN '  – to maintain that position.

If you're a Gouty, prawns etc. will find you out , and you will have to sprinkle some AP on them! ;) -and you will NOT be happy , twice over !


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