You think your luck is bad?

Gout Support Home Page Forums Please Help My Gout! Your Gout You think your luck is bad?

This topic contains 26 replies, has 7 voices, and was last updated by Avatar of KeithTaylor KeithTaylor 1 year, 3 months ago.

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  • #3625
    Avatar of Jeffros
    Jeffros
    Participant

    Hello, first post here.  Seems like allot of great people helping each other out with their methods of dealing with this crap disease.

     

    I will try to make this short.  I haven't shared this experience with many people, or forums.

     

    I am 43yrs old, male, white, 6'2″ ~250lbs.  I drink allot of beer, eat whatever I want, don't get too much exercise, and I've worked from home as a web developer for the past 12 years.  I am single and live alone with my 4 cats.

     

    Starting in 2004 (when I was actually in pretty good shape), I started getting gout attacks in my feet.  Not in my big toe, I've never had an attack in the big toe.  As everyone knows, it's crippling and I had to crawl, hop, or use crutches to get around.  Gout is not in my family history.

     

    As the years went on, my attacks went from 2-3 times a year, to 4-5 times a year and sometimes lasting 1 month!  People don't understand the pain that gout causes.

     

    In 2009, my “bad knee” which was bad due to wrestling in high school and injuries riding my dirtbike, was attacked by gout.  It was the worst attack to date (well, my current attack could get allot worse and match it).  I had it drained THREE times and the doc was floored by how much fluid came out each time (drained about 2 weeks apart).  My knee was permanently damaged from this attack, I never re-gained full extension (flexion I think it's called).

     

    So in late 2009, I moved closer to my family because I was very sick, and knew I needed to be close to home.  In Feb 2010 I was diagnosed with Familial adenomatous polyposis (FAP).  After a colonoscopy, I was told I had well over 100 polyps in my large intestine and had a tumor in my rectum.  I was then made aware that I would be going on chemo and radiation, then having my entire colon and rectum removed and sporting a brand new illieostomy bag.

     

    After my surgery, I was couch bound for around a month (I lost 80lbs and looked like a freaky skeleton dood), I had no alcohol, no bad gout “triggering” foods for almost 60 days, and I had a gout attack in my right ankle.  This delayed my recovery efforts another month.  This makes be believe that noone really knows what causes this disease and that it's different like an autoimmune disease is (different for each person).

     

    So, I beat cancer.  Side effects?  I have neuropathy in both feet which can hurt near as much as gout, and sexual disfunction.  I've been addicted to narcotiics twice in the past two years (I've been off for 2 months now).   I also have a chronic neck pain that noone can explain, help, or cure.  Bouts of depression triggered by drug withdrawals.

     

    2011, paying HUGE amounts of medical bills since this all started, barely keeping my job… I decide to go ride my dirtbike in my yard.  I am a very experienced rider and this was a FLUKE.  I lost control due to my tire being under inflated, and the bike stood straight up after a panic throttle, put my leg out (yes, the bad leg) and the weight of the bike twisted my knee and I broke my leg.  The absolute WORST place to break a bone.  It is a tibial plateau fracture.  I had surgery and had a plate and screws added to the top of my tibia, adding to my fatass knee.

     

    That brings me to today.  After being on crutches for over 60 days, doing rehab twice a week, I finally went off the crutches and was doing pretty good, even though my leg still wasn't going to extend all the way.  This morning I woke up to a gout attack in my bad knee.  It's warm, starting to swell, and VERY painful.  I took some indomethicin and plan on taking it for a couple of days to see if it helps.  I also have some colchicine(sp?) if this doesn't work.

     

    The reason I am posting this?  It feels good to write it out and see what I've actually been through.  Reading it from another person's perspective and justifying the amount of rage, hate, and depression I have.  I am a pretty easy going guy, but am sick of people telling me to be positive and how things will work out in the end.  The end, haha.

     

    I hope everyone here finds relief in their gout experience.  I've learned allot from this forum in only a short amount of time and will be trying out some of the remedies (I've had alipuroniol for the last 6 months and never took it).  So I have myself to blame, but I haven't had an attack since 11-2010 and thought it was done for good.

     

    Take care all.

     

    I am taking neutontin for my nerve pain (neuropathy), vitamin D, b-12, multi-vitamon, glucosamine & chondroitin, folic acid, and then tramadol as needed (I feel absolutely nothing with 100mg of tramadol).

    #11865

    Welcome jeffros,

    I will be brief for a change.

     

    Uric Acid Number?

     

    Nothing else really matters, though I do sympathize, and feel sorry that the experts never forced allopurinol on you earlier.

    #11873
    Avatar of Jeffros
    Jeffros
    Participant

    I just typed out a reply, and decided to “subscribe” by clicking on the link below this WYSIWYG editor, and it took me to another page, therefore I am typing this all over again.  Can this editor be disabled?

     

    Thanks for the welcome.

     

    I see my primary care tomorrow to draw blood, I will know my UA level Monday.  I am also going to have an MRI done on my knee, as I may require more surgery since my leg won't fully extend due to many injuries, gout, etc.

     

    The indomethacin did it's job and I am pain free at rest and sitting.  The knee still requires me to use one crutch.

     

    I will be starting an allipurinol regimen after the gout attack has resided.

     

    Thanks again, I plan on using this site allot in the future.

    #11878

    Sorry about the editor problems. This forum software will be replaced soon, so why not use the Question & Answer service and the Debate pages as an alternative? [search above to find them, or just click the Home button above, or GP I in the menubar]

    They are not perfect, yet, but much easier for me to improve. Please bear with me – this WILL get better.

    If you prefer to stay with this forum for now, you can change the editor in your Profile settings.

    #11886
    Avatar of zip2play
    zip2play
    Participant

    Welcome Jeffros…so sad to hear that you HAD the allopurinol and didn't take it. I am sure that won't happen again.

     

    The gout will get better but I hope you can get a resolution of the mangled knee. I went for weeks unable to straighten mine but it was only a ripped meniscus that kept getting stuck inside the joint acting like a wedge.

    #11896
    Avatar of Jeffros
    Jeffros
    Participant

    My UA level was a “7″ he said.  He said anything about 6 was high, so I guess it sounds about right.  I am sure it's even lower now.

     

    I've never taken the allopurinol in the last couple years because of the tons of other drugs I was on and the fact I didn't have gout but once in two years while dealing with cancer.

     

    The attack is over and I am on day 2 of allopurinol (300mg) and still on Indomethacin 50mg for another couple days.

     

    I am back to no crutches and the leg and knee is feeling as strong as it has since the day I broke it in early June.

     

    I guess it's a gout only forum here, so I will keep my other issues to myself.

    #11898

    jeffros_gout said:

    I guess it's a gout only forum here, so I will keep my other issues to myself.


    It is best to stick to gout, but some of your other problems are related.
     

    I wanted to be brief in my first response to focus on what really matters – your uric acid level.

    The reason I was disappointed about lack of earlier treatment is that surgery, chemo, and rapid weight loss are all extremely high on the list of things that cause gout. They all have a huge potential to significantly raise uric acid in the blood. Your medical team should know this, and they should have put you on allopurinol at the start of your treatment to reduce your gout risks.

    Personally, I am very interested in your work as a web developer, but you are right when you suggest that this is not the place to discuss it. As for cats…

    Angry Cat

    No thanks!

    #11900
    Avatar of zip2play
    zip2play
    Participant

    Keith,

     

    That is the very best CAT AND MOUSE picture I have ever seen. If I can edit it smaller I'm going to use it as my avatar on another buttetin board.

     

    jefffros,

    I hope that cancer is well and truly behind you. I have no doubt that the cancer, the massive weight loss  and the chemotherapeutic agents used are very much part and parcel of the initiation of your gout. Your story was heartbreaking.

     All that was required for my gout initiation was a decade of hydrochlorothiazide.

    But alas, unlike may illnesses that disappear once the cause is removed, once gout is initiated it is forever becasue the crystals of urate will always make it impossible to superaturate your serum again.

    So, no matter the cause, once a goutie ALWAYS a goutie.

     

    That neck pain is part of your job description, been there, done that. Here are two easy tips:

    1. Every month move your monitor from right, to center to left…don't put it off.

    2. NEVER cradle a phone between your shoulder and head while you type.

     

    And two harder ones:

    3. try about a month of daily FLEXERIL (cyclobenzapril…feels like schitte but it eventually breaks the spasms.)

    4. try some sort of regular neck traction

    #11904
    Avatar of Jeffros
    Jeffros
    Participant

    zip2play said:

    Keith,

     

    That is the very best CAT AND MOUSE picture I have ever seen. If I can edit it smaller I'm going to use it as my avatar on another buttetin board.

     

    jefffros,

    I hope that cancer is well and truly behind you. I have no doubt that the cancer, the massive weight loss  and the chemotherapeutic agents used are very much part and parcel of the initiation of your gout. Your story was heartbreaking.

     All that was required for my gout initiation was a decade of hydrochlorothiazide.

    But alas, unlike may illnesses that disappear once the cause is removed, once gout is initiated it is forever becasue the crystals of urate will always make it impossible to superaturate your serum again.

    So, no matter the cause, once a goutie ALWAYS a goutie.

     

    That neck pain is part of your job description, been there, done that. Here are two easy tips:

    1. Every month move your monitor from right, to center to left…don't put it off.

    2. NEVER cradle a phone between your shoulder and head while you type.

     

    And two harder ones:

    3. try about a month of daily FLEXERIL (cyclobenzapril…feels like schitte but it eventually breaks the spasms.)

    4. try some sort of regular neck traction


    Thanks zip2play.  Noone knows for sure where my neck pain comes from, but it's possible from my work.  I've been working for the same company for 12 years in Nov.  And don't remember when it started.  Both my neck pain and gout started years before my cancer did.

     

    I can't move my monitor like you described.  I have three monitors, a 30″ in the center, and two 24″ 's on the left and right.

     

    I almost never put the phone to my ear, I use speakerphone on my Panasonic handsets, people don't even realize they're on speaker phone.

     

    I have been trying to improve my posture sitting in font of the computer, but my eyes aren't what they used to and sometimes I have to get my face about 12″ from the screens.  I look like a 90 year old squinting and such.

     

    I've actually tried Flerxeril a few times, but not for my neck.  It was when I ran out of oxycodone after breaking my leg, I was going to try anything to relieve the pain.  It did help from what I remember.  The other couple times I tried it was when my feet and neck were really bothering me, and I didn't notice a thing.  My old roomate left it here.  I don't have cramps or spasms in my neck.  Just a constant dull pain that gets worse as the day goes on, and spreads up to what seems like my brain giving me a headache.

     

    My original statement about Tramadol didn't really make sense.  What I mean to say about Tramadol is, I felt no different, pain-wise while on it, and I tried it numerious times.  Ibuprofen 600mg doesn't do squat for me either.

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