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  • in reply to: Starting Allopurinol (Again) #11277
    patrick
    Participant

    All I was trying to say is that getting your UA level below 6.0 is the only reliable long-term cure for people who get gout.? I don't know much about this disease, but I think that is a fairly well established fact.? I'm far from a god on this subject, or any other, in case I gave that impression.

    patrick
    Participant

    Azasadny,? sorry to hear about your flareups. You must have a lot of uric acid deposited in your body.? I've read it can be in the bones in addition to soft tissues. ? When I was decrystalizing, I drank a lot of water and tried to exercise as much as possible.? Also drank coffee, which I figured would help as a diuretic.?

    ?

    You mentioned that your liver enzymes were elevated.? I'm dealing with that right now and was wondering if you could speak a little more to it.? What were your levels?? What did the docs say about it??? Mine are elevated at 62 AST / 83 ALT, or 2x the ideal level.? Doc says I need to try the other drug options and rule out liver cancer, hepatitis, etc. It would be great to hear about this part of your experience if you're willing to share.

    ?

    Thanks.

    in reply to: Discouraged #11274
    patrick
    Participant

    Thanks for your advice.? The various docs seem to think that the elevated liver enzymes might be the beginning of a sensitivity.? I had a little bit of skin rash on my hand, which I thought was ecsyma but they weren't sure.? I want to see a hepatologist to rule out cancer, etc.? Some form of liver disease could have been the cause of the elevated uric acid levels, I think, since the liver is the source of uric acid production.? I don't have a diet that creates high uric acid — no fructose, 90% vegetarian — so there is clearly something wrong with one of my organs.? Or else I did something very bad in a prior life Wink?? I wish to God Allopurinol had worked for me, but it looks like I will have to try the other options to see.? Problem is that docs say that first I need to get the liver enzymes under control. Their logic makes sense to me — liver trumps UA level.? Then I get to try a different drug, either Uloric or Probenecid.? So for the moment I'm back in the situation of not taking anything and worrying about every twitch and whether it might signal the return of a gout attack.

    in reply to: Starting Allopurinol (Again) #11273
    patrick
    Participant

    For what it's worth, my experience getting on Allopurinol went fine.? I did get a couple of little flares the first month, but with colchicine they were manageable.? If you can't take Colchicine, Indometh should take care of the flares.? In my experience, colchicine wasn't as quick at bringing pain relief as Indo, but I couldn't bear the side effects of Indo.?? I sympathize with your worries, however, as having gout attacks is totally debilitating and can interfere with your job.? Look at it as an investment in your future.? Once you get the UA levels under control, you'll have your life back. ? I'm one of the very unlucky people who has a sensitivity to Allopurinol and am currently going off it.? Life has been good on it, and I am hopeful I can find a cure for high UA level that works for me.? As everyone says on this site, it's the only reliable cure.?

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